Had a couple of seizures today,
12:20 AM 2-3 back to back
7:41 AM
Monday, May 29, 2006
Saturday, May 20, 2006
Yard work
Just helping Mom and Dad with yard work.
I really enjoy watching Mom use the hedge trimmer. I even take it afterwards and put it my room.
It kinda of drives Mom crazy but I like it a lot!
After that we sweep up or use the blower to get all the clippings.
With Dad's guidance I help mow the lawn as well. You can see I get easily distracted by the hedge trimmer, dog, airplanes, motorcylces ... whatever is going by.
I really enjoy watching Mom use the hedge trimmer. I even take it afterwards and put it my room.
It kinda of drives Mom crazy but I like it a lot!
After that we sweep up or use the blower to get all the clippings.
With Dad's guidance I help mow the lawn as well. You can see I get easily distracted by the hedge trimmer, dog, airplanes, motorcylces ... whatever is going by.
Wednesday, May 17, 2006
Things I do
Watch planes with Dad at night
Help Mom with the laundary
Go to school even during the Summer. The bus comes right to my house!
Sunday, May 14, 2006
Day of Seizures
Well, I guess it does not matter where I am staying, it is Saturday night and I am having multiple seizures.
12:10 AM, 1:25 AM, 3:14 AM, 3:51 AM, 4:00 Diastat, 7:30, 8:30, 9:05 Diastat again, 11:17 AM driving home even though Mom and Dad got me in Grandpa's car some how!
12:10 AM, 1:25 AM, 3:14 AM, 3:51 AM, 4:00 Diastat, 7:30, 8:30, 9:05 Diastat again, 11:17 AM driving home even though Mom and Dad got me in Grandpa's car some how!
Saturday, May 13, 2006
Road Trip
Hey this is early but Dad got me up at 7 AM to leave and go get Grandpa. Then we are driving to Austin to get my sister Megan (Hopefully some Mac Donalds along the way.)
Grandpa and I take some time to relax and enjoy a coke while the girls get ready.
From there we are driving to Abilene to see Malinda, my next older sister. She is having her birthday and graduating from Abilene Christian University.
So after a great lunch everyone went to graduation. I stayed and did puzzles with a friend of Malinda's.
Here is everyone after the ceremony. At this school a parent, Mom, also participates. At one point int he ceremony they put the ribbon around their neck. It is kinda of a symbol of passage and graduation.
Sister Megan had a grand time. She went around cracking 'cascarones' (hollowed eggs that have been filled with confetti.) on graduates heads. Mostly those from San Antonio where people follow the same tradition during Fiesta.
Grandpa and I take some time to relax and enjoy a coke while the girls get ready.
From there we are driving to Abilene to see Malinda, my next older sister. She is having her birthday and graduating from Abilene Christian University.
So after a great lunch everyone went to graduation. I stayed and did puzzles with a friend of Malinda's.
Here is everyone after the ceremony. At this school a parent, Mom, also participates. At one point int he ceremony they put the ribbon around their neck. It is kinda of a symbol of passage and graduation.
Sister Megan had a grand time. She went around cracking 'cascarones' (hollowed eggs that have been filled with confetti.) on graduates heads. Mostly those from San Antonio where people follow the same tradition during Fiesta.
Tuesday, May 09, 2006
Good Day
Neal and Marycke,
Alex is working on PECS in his ALE Reading Class. So far he uses Edmark Reading Picture to ask for Edmark and for more time on the program. He has also used the puzzle picture, shedder picture, and work picture. He will still not travel to give you the picture so we have not moved to the communication book yet. He is doing great so far. His new Edmark words are water, Mother, orange, and candy.
Enjoy chasing the trains,
Linda Higgins
5-8-06
He did fine today, except he was without sweatbands....and kept looking for them when he had to wipe his mouth. Mrs. Ory
Neal Shaver wrote:
Morning all,
We did have a fun Friday and a great time with all the rain on Saturday.
But after chasing trains Saturday night and finally getting him to sleep,
Alex started a series of 6 seizures, from 11:30 to 8:30 AM.
So we had to give him Diastat and he spent all of Sunday in bed.
But he is up this morning. Eating okay. No longer does he exhibit the
euphoria of last week.
Oh well, he will have to ‘work off’ the Diastat today. So you can expect him to be
a ‘little quiet’.
Regards,
Neal
Alex is working on PECS in his ALE Reading Class. So far he uses Edmark Reading Picture to ask for Edmark and for more time on the program. He has also used the puzzle picture, shedder picture, and work picture. He will still not travel to give you the picture so we have not moved to the communication book yet. He is doing great so far. His new Edmark words are water, Mother, orange, and candy.
Enjoy chasing the trains,
Linda Higgins
5-8-06
He did fine today, except he was without sweatbands....and kept looking for them when he had to wipe his mouth. Mrs. Ory
Neal Shaver wrote:
Morning all,
We did have a fun Friday and a great time with all the rain on Saturday.
But after chasing trains Saturday night and finally getting him to sleep,
Alex started a series of 6 seizures, from 11:30 to 8:30 AM.
So we had to give him Diastat and he spent all of Sunday in bed.
But he is up this morning. Eating okay. No longer does he exhibit the
euphoria of last week.
Oh well, he will have to ‘work off’ the Diastat today. So you can expect him to be
a ‘little quiet’.
Regards,
Neal
Sunday, May 07, 2006
Day of Seizures
Another Saturday night and Sunday full of seizures. Took Diastat to get things under control.
12:20 AM
1:50
4:12
6:24
7:30 gave him his daily meds
7:48
7:52 15 mg Diastat
12:20 AM
1:50
4:12
6:24
7:30 gave him his daily meds
7:48
7:52 15 mg Diastat
Saturday, May 06, 2006
Tuesday, May 02, 2006
Good Day
2 for 2
Alex had a good night and a good morning.
He has had breakfast and is now playing with the garage door opener.
Hope you have a great day.
Regards,
Neal
Alex had a good night and a good morning.
He has had breakfast and is now playing with the garage door opener.
Hope you have a great day.
Regards,
Neal
Wednesday, April 26, 2006
Night Fun
I watched the dvd it was great. You were very near where I live in Marion. I live 2 blocks from the railroad tracks Alex would love that. I recognized 78 near Schertz. Alex also did a great job fueling the car. Please send us more.
Regards
Linda Perkins
4-25-06
Alex seemed to enjoy the Fiesta party given by student council today during 3rd pd.
He even held the bat and swung at the pineda several times (with help). Mrs. Ory
Marycke Shaver wrote:
Morning folks,
Alex had a good night. No seizures.
He was much easier to get up this AM and he had a big ‘hello’ for his grandpa.
He ate a good breakfast and is ready for the bus.
Hope you have a fine day.
Regards,
Neal
No trains last night so we had to watch the planes:
Regards
Linda Perkins
4-25-06
Alex seemed to enjoy the Fiesta party given by student council today during 3rd pd.
He even held the bat and swung at the pineda several times (with help). Mrs. Ory
Marycke Shaver wrote:
Morning folks,
Alex had a good night. No seizures.
He was much easier to get up this AM and he had a big ‘hello’ for his grandpa.
He ate a good breakfast and is ready for the bus.
Hope you have a fine day.
Regards,
Neal
No trains last night so we had to watch the planes:
Saturday, April 22, 2006
Monday, April 17, 2006
Bird Show
During Fiesta ( a great 10 days of clebration here in San Antonio) we went to the Bird Show. They make lots of noise!
Wednesday, April 12, 2006
Horseback
Just huggin my Mom while she signs me up for horseback riding.
I go to the Saddle Light Riding center on the North side of San ANtonio near Retama Race track.
This is me on my horse Native.
I go to the Saddle Light Riding center on the North side of San ANtonio near Retama Race track.
This is me on my horse Native.
Saturday, April 08, 2006
Warm morning
This morning I got up after a good night's sleep. I went to bed early and woke up at 7:15 AM. But after my bus ride to school I felt pretty tired.
SO the nurse called Mom and she brought me home.
Afte a quick stop at the golden arches I was pretty fired up. I played with Grandpa, Abby, Neal, did a puzzle, drank Coke and generally had a good time.
Then by 1 PM I was tired again. I wanted to nap and my drueling had increased.
But that pasted and now I am playing with the Sandpile in the drive way and watching the helicopters fly over.
Life is good.
SO the nurse called Mom and she brought me home.
Afte a quick stop at the golden arches I was pretty fired up. I played with Grandpa, Abby, Neal, did a puzzle, drank Coke and generally had a good time.
Then by 1 PM I was tired again. I wanted to nap and my drueling had increased.
But that pasted and now I am playing with the Sandpile in the drive way and watching the helicopters fly over.
Life is good.
Friday, April 07, 2006
Rainy Day
After weeks on dry days we got rain. But it was about 20 minutes West of is. So Dad and got in the car and did a little rain chasing.
Finally - RAIN!
Sometime last year I stole Mom's umbrella. You can see that I was frustrated trying to open it. So now it is all bent and Mom has a neew one.
Rainy Thursday
Finally - RAIN!
Sometime last year I stole Mom's umbrella. You can see that I was frustrated trying to open it. So now it is all bent and Mom has a neew one.
Rainy Thursday
Wednesday, April 05, 2006
Dinner time
Sometimes Mom and Dad take me out for dinner. Tonight we went to the Outback. Dad and Mom get Prime Rib but I like the Mac and Cheese. I really like it when the waiter or waitress comes and gets my vup for a 'refill' of coke. They all seem to smile when they have someone clapping for them.
Wash Day
Whenever Mom will let me, I like to help with the wash. It just seems sometimes I put the dirt clothes in with the clean or move unwashed stuff into the dryer. Ooops.
Doing the wash
Doing the wash
Tuesday, April 04, 2006
School Day
Ms Betty helps me every day on the bus. I leave at 8:20 and get back around 4:45. I like it when we have to wait for a train.
On the bus with Betty
On the bus with Betty
Monday, April 03, 2006
Firetruck
With the lack of rain, the fire department came by to check all the fire hydrants.
Awesome.
Wow, fire truck!
Awesome.
Wow, fire truck!
Saturday, April 01, 2006
Train chasing day
Down comes the crossing guard
A 2nd train
Switching yard
Train by the airport
Watching trains
Subscribe to:
Posts (Atom)
