Saturday, April 30, 2005
Friday, April 29, 2005
But I was going to see Dr. Zabo this afternoon anyway, so I guess it does not matter.
Jo Ann puts the padle on my VNS
He plans to increase my VNS deceive. They just place this 'paddle' over my VNS and then the Dr. makes the adjusts via his PDA.
Dr. Zabo adjusts my VNS
Hopefully this will decrease the number of seizures. Here at the end of the month it appears I had seizures 20 out of 30 days. Bummer!
Thursday, April 28, 2005
Wednesday, April 27, 2005
Tuesday, April 26, 2005
He seems better today. No seizures last night.
He again was hard to wake up. Sleep walking to the table.
But he sat right down, picked up his fork and began eating strawberries.
Then he moved on to bacon, water and took meds without any resistance.
Hope you have a good track meet.
Monday, April 25, 2005
Marycke did visit with some folks that have a son a little younger than Alex. He has been having daily seizures since September. And now there 19 year old daughter is having seizures and is in the hospital. So maybe 2-3 days a week is not too bad.
Another night without seizures. That is a good thing!
Alex has just spent 20 minutes staring at his plate. Now he is eating some sausage.
He wont get much before the bus.
Hope you have a good time at the Mall.
Look for Alex to display 3 fingers sideways as you go by Burger King in front of the Mall.
Given the choice he picks BK over Mac or Wendys
Sunday, April 24, 2005
Saturday, April 23, 2005
6:40 AM, tonic clonic and the same again at 8:15 AM.
But by noon he is up and anxious to get out to Sonic or Mac Donalds.
Neal takes him over to FM 78, the Union Pacific RR refilling stations, and they chase trains for 3-4 hours.
Love those 'Hots!!'
Thursday, April 21, 2005
Wednesday, April 20, 2005
We spent most of the morning staring at breakfast. He never did eat or drink anything.
But when the bus arrived, Alex jumped up, and trotted off to get on the bus.
I did post up video of his night time seizures. If you really want to see them just send me a note and I'll email the link.
Tuesday, April 19, 2005
I have been sleeping with Alex the last 2 nights. Yesterday he had 6 seizures and did not go to school.
To day, he has had 8. 4 from 11 to 1:30 AM at which time I gave him Diastat. Then after he started with the seizures, 6:50 Am to 9:30 - 4 more and Diastat again.
I figure one more round of seizures and we are off to the ER.
But Alex stopped. Spent the day drooling and basically lying around
I hope we have a good night tonight!!!
Monday, April 18, 2005
Sunday, April 17, 2005
No seizures, always a good start, then breakfast with Mom & Dad. My big sister Megan was there too.
The Dad took me down to the Zoo to ride the train. We got to go two times.
Oh, then we went through a tunnel. It was very dark!
Hold on tight Dad! Here we go again!!
The I came home and worked on my dots again.
Then Mom gave me pie with candles. What no cake?
Lastly we got to have cake with all my friends at my church LIFE group.
Ah, candles and singing are the best.
Time for bed. School again tomorrow.
Saturday, April 16, 2005
Various pollens seem rather high. I hope this is not the start of six more days of seizures.
San Antonio kicks off it annual Fiesta Week today. Alex's sister Megan plans to come down for the 'Oyster Bake'
Hey, who was the first person that said, 'Let's crack open this rock and see if there is something inside we can eat."
I think Megan comes done for the music and the crowds!!
and Alex's Mom is off to the Southwestcraft Center.
For our out of town guests, here are some pictures from last year's Fiesta.
One night we have a River Parade!
On another we have Old Night in San Antonio. The ladies have very colorful outfits.
Then we have the Battle of Flowers parade. Schools, Banks and many other places close for that Friday.
There are about a dozen Princesses in colorful gowns. All along the parade route people shout, "Show us your shoes!" Because under those gowns, most have on tennis sneakers.
Then on the last night we have the biggest Nighttime Parade in the US. The Flambeau Parade. Viva San Antonio!
I got to play bridge last night over at Dad's. Since Mom's passing I have been Dad's bridge partner. 12 of us play once a month. Dad was a good host!
Wednesday, April 13, 2005
Here is Alex working on his Dot Board. Why I took this picture was, for the first time I saw Alex arrange the colors in a complex pattern. Prior to this he only put them in a straight row. Then ever since school began last Fall, he started making squares and rectangles rather than lines.
Clearly to me this was a Diamond. Marycke thought it might be a square and he was just sitting 'off center'. At any rate, you can see the collection of electrical cords he drags around the house. He even takes them into his bed. Then on his shirt you see the results of his excessive drooling. This is very common after numerous seizures.
Alex with his Dot Board
Tuesday, April 12, 2005
Neal & Marycke,
I am sorry I just read your e-mail for today. Alex was very sleepy and tired yesterday after you brought him in. He did not eat much lunch, but he did perk up for the last period of the day. He seemed real thirsty though. Linda (Alex's teacher)
Friday, April 08, 2005
12:35 AM (2 back to back, 2 minutes each)
1:52 AM - gave Klonopin patch
3:39 AM - gave 15 mg Diastat
Ah man, today was picnic day at school. Chips and hot dogs. 2 things he really likes.
Email to Linda, Alex's teacher,
Sorry to say, last night was much worse than yesterday.
So far he has had 5 seizures. Four last night and another one now at 7:40.
I thought I might bring him to the park (what time is that?) but I think he will be in bed most of today.
Oh well, hope to see you all Monday.
Thursday, April 07, 2005
We tried a new 0.5 mg Klonopin patch you can put on Alex's tongue after the 1st seizure. Dr. Salinas said he had some success in this stopping seizures.
No this time.
Wednesday, April 06, 2005
Alex seems to be doing fine.
Hey - 10 days - no seizures!!
Sunday, April 03, 2005
We had a fun time yesterday at Grandpa's garage sale. Then we went to Chester's for dinner. I had two BIG hot dogs.
This has been a good week. I have gone the whole week without any seizures.
Acutally after a rough 40 days, the last 2 weeks have not been bad. I had no seizures for 4 days, then 1 each day March 27-29. Since then (7) days, I have not had any seizures.
Most mornings I have gotten up on my own. About and hour earlier than usual. So maybe I am sleeping better during the night. Some Doctors say there is a relationship between sleep patterns and epilepsy.
Saturday, April 02, 2005
Friday, April 01, 2005
Five days again. Wow!
You sure we can’t hire you to guide him through the weekends? Hah!