We have made it to day 10 and have to wonder.....
When?
Tomorrow?
What if he does not have any for the next week and we are suppose to replace his VNS? Will we do it?
Nice worry to have.
Linda,
Another good night.
Hard to get the boy up again this AM, but he is on the bus.
He had pancakes and bacon. Two cups of water.
Then a little typing with his Grandpa.
And he is all yours.
Have a great day.
Neal
PS. No Alex tomorrow in the AM.
Linda,
The surgery next week is just to replace the battery of his VNS (vagal nerve stimulator) which is just underneath the skin under his collarbone on his left side. You can actually see and feel the outline of it now. The replacement battery will be smaller than what he has now so less noticeable. If his preop appt tomorrow goes well and doesn't last too long Neal will probably drop him off at school afterwards. The surgery itself is done on an outpatient basis, so he'll be home the same day (Feb.8th)...not sure if he'll make it to school the next day or not.
Good luck on your eval.
Marycke
From: Linda Higgins
Sent: Tuesday, February 01, 2005 11:16 AM
To: Marycke Shaver
Subject: Re: Alex
Neal & Marycke,
This is my two-week window to be observed so I have been kept really busy and the bake sale on Monday as well as the CBI to Miss Nelson Is Missing on Thursday so I apologize for not answering all your e-mails but thank you for keeping me current on Alex. He has been having wonderful days here at school also and no seizures but a great appetite. A little feisty sometime but we can work with that. What is the surgery going to correct and we will miss him tomorrow. Thanks for being great parents, Linda
No comments:
Post a Comment