It’s Wednesday AM. Marycke has left for work and I have been busy preparing Alex’s breakfast. To day we go to meet the neurosurgeon, Dr. Jimenez, who will replace Alex’s VNS.
Daily meds
2 scoops
As I enter Alex’s room at 7:42 AM I see the tell tale sign as the right leg is shivering ever so slightly. I grab his shoulder and roll him on his back hoping to roust him from this deep sleep which is going to lead into a tonic clonic seizure. Alex! Alex! Wake up!
But to no available. The shivers increase, the left arm raise over his head. Up comes the left leg our goes the right. The scrunching up of his face. And the noises; the gagging; gasping for breath; moaning and tremendous tension throughout his body.
I roll him back to see the water marks progressing down his leg and covering the sheets. This is not going to be a great day. At least we had 10 good ones.
Alex gets a sponge bath, new clothes and a promise to stop at Mac Donalds for breakfast if he would just take his medicine and get in the car. He did and off we go.
We get to the medical center 15 minutes early. After a quick dash to Mac Donalds we arrive at the doctor’s office at 8:59 AM. One minute early. Bummer the doctor is not end. 30 minutes later and still no doctor. Alex is getting antsy. Finally we meet Dr. J at 9:45. He explains Alex surgery is minor and should last more than 45 minutes.
Alex is all done and ready to go. But wait, we have to go get blood work done. Alex hangs in there while the kid before cries bloody murder. Four vials of blood later and he still did not cry. Good boy.
More fries on the trip home. Then lunch with Grandpa in the office. Haley gets me more fries and Dad gets me more to drink. This is not too bad.
Alex take his meds
Alex take his meds 2
I take my meds and get to sleep at a normal time.
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