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Unfortunately Alex has developed a fever of 102.4 So we expect to have to go back to university hospital this AM if we cannot get it under control
We are coming up on day 21 of Alex not eating (His only nutrition is Ensure that we giving him 3 times a day squirting it into his mouth with a syringe and hoping he does not spit it back out.) Not eating makes him very susceptible to infection. So Doctor Martin’s office wants to monitor him closely. We may also have to have a feeding tube put in.
On Thursday they determine his medication levels to be 200% of the therapeutic level which may account for his lack of appetite and sleeping 15-20 hours a day. The doctors are now backing off on the drug levels.
On the upside, no seizures for the past 8 days!
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We are coming up on day 21 of Alex not eating (His only nutrition is Ensure that we giving him 3 times a day squirting it into his mouth with a syringe and hoping he does not spit it back out.) Not eating makes him very susceptible to infection. So Doctor Martin’s office wants to monitor him closely. We may also have to have a feeding tube put in.
On Thursday they determine his medication levels to be 200% of the therapeutic level which may account for his lack of appetite and sleeping 15-20 hours a day. The doctors are now backing off on the drug levels.
On the upside, no seizures for the past 8 days!
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