Made it through a night without seizures. Alex looks good and ready for school.
We had a triple play weekend. A seizure Friday AM of course but then he made it to school. Then 11:30 and 5 AM Saturday so he got DIASTAT and slept till 2 PM
Then Sunday AM another one in the early morning, but he got up by 11 AM. Thankfully none last night so perhaps you will have a good day.
Then Sunday AM another one in the early morning, but he got up by 11 AM. Thankfully none last night so perhaps you will have a good day.
We did get to go looking for trains yesterday. But we only saw a couple stopped ones. But Alex did enjoy the cows and has decided to once again ‘talk to them’. Alex hangs his head out the window, says, ‘Uhhhhhhhhhh!” and then follows with a big ‘COW!’
Marycke and I have noticed with the change of meds Alex seems to want to communicate more. Then yesterday he mad coffee on his own (a little strong) and then spend most of the evening in front of the oven getting whomever would walk by, to help him set the timer. He would watch it count down and then 2-3 minutes later get the beep! Then reset it to go again. For sure he did that for more than 2 hours last night.
Marycke and I have noticed with the change of meds Alex seems to want to communicate more. Then yesterday he mad coffee on his own (a little strong) and then spend most of the evening in front of the oven getting whomever would walk by, to help him set the timer. He would watch it count down and then 2-3 minutes later get the beep! Then reset it to go again. For sure he did that for more than 2 hours last night.
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