Morning Moanings

It's early on a Saturday morning. Nearly 4:30 AM. I am working in the offie and as always I have the intercom on. I here Alex russling in his bed. It is getting louder and louder. Now he is snorting. Bummer! First day of the CHrsitmas holiday and he is having a seizure. I am up out of my chair, through on the hallway light, trying to decide whether to wake Marycke or allow her to sleep. Into Alex's room I barge, throw on the lights, and whoa! He is sitting up in bed, no seizing but laughing. I guess he had passed some gas and was laughing - not seizing. So off go the lights. He gets a little back rub from Dad. And I am back in the office. Thankful that there was no seizure and we all may have an enjoyable Christmas. We hope you all have a great time as well.

Seizure Monday

Well we made it through the weekend but now 5 AM Monday morning and Alex is seizing. He had crawled into bed around 3:30 AM. I tried to get him to go potty forst but he refused.

So of course now he is seizing and wetting the bed. Looks like another weekly trip to the Wash Cycle to wash the kingsize mattress pad.

Marycke gave him 20 mg DIASTAT. No more seizure till, 3:00 PM. Hmm, that is unusal. So he gets another 10 mg.

We got him dress and hopedd he would be ready for school. He had slept through the night and remainded home all day Tuesday.

Another Monday Moaning

Well we made it through the weekend - no seizures. BUt 4 AM this morning he had another seziure. Marycke gave him 20 mg DIASTAT. No school.

We did have a fun weekend watching trains and planes. It was a nice December, South Texas Day, you know, mid 70s. So we went to the TTM and rode the train. Alex also likes the scale model trains inside.

But I guess weekly seizures remain the 'name of the game.'

Making Coffee

Not only does Alex like to drink coffee, he enjoys making it as well. Here is the video.

Nice week

Alex is doing well. He has been sleeping in his own bed. Eating well and generally been in a good mood. He did have nose bleeds Wednesday and Thursday but they were easily stopped.

Nose Bleed

The weather must be getting cooler and dryer. Alex has had several nose bleeds. Here is his note from school.

Neal & Marycke,
Hi, Alex has been working great at McDonalds and MacArthur Park Lutheran Church. Today he had a nosebleed and got some blood on his clothes. I wanted to tell you so you would not worry. Alex has been asking for a coke at the MacArthur Park work site every time he is there so we are working on using vending machines for our break.

Enjoy this great day,
Linda Higgins

Eye Fluttering

Alex continues with weekly seizures. Usually Saturday night or Sunday AM. Quite often while watching trains or doing a puzzle, he will stop, flutter his eyes, and then resume what he is doing. We are checking with the Doctor to see if these are peti mal seizures. You may be able to see it here on this video.