Monday, April 30, 2007
Wednesday, April 25, 2007
Tuesday, April 24, 2007
Alex had a great night. He really seems back to normal.
We went and watched planes last night. And all day he has been asking about trains. When he says ‘Bot’ that means the trains are ‘Stopped’
He got up on his own this morning. 20 minutes earlier than normal. So we had a nice relaxing breakfast, coffee and even time for puzzles.
Hope this makes it to everyone I am trying out Marycke’s new laptop.
Monday, April 23, 2007
Friday, April 20, 2007
Thursday, April 19, 2007
Wednesday, April 18, 2007
Tuesday, April 17, 2007
Monday, April 16, 2007
Sorry to report, no Alex. We did go nearly 2 weeks without a seizure but all day Sunday he more than made up for the missed ones.
Saturday night while Marycke was out, Alex came to me in the office and said 'Yuck.' I responded, 'Ut oh, did you go pooh? Let me check you pants.'
This is because usually if he does not wipe himself and gets some on his short he tells me, 'Yuck.' But not the shorts look clean.
Again Alex gets closer and says, 'Yuck.'/ Okay lets go check. We walk back to the bathroom and - he has thrown up. Now Alex does not do this too often so I guess he really does not know what to do when he feels sick. But he did help me clean everything up and seemed okay.
An hour later Mom comes home. We tell her this story and all seems okay. Another hour later and he hear an 'unusual noise' in the hallway. Sure enough Alex has tossed his cookies again. 'Yuck.'
Anyway, probably more than Marycke want me to share, but later that night, around midnight, he started having seizures. Fast forward to morning and I learn from Marycke that he has had six seizures since midnight and wet the bed two times. So we transfer him back to his bed and start the wash. An hour later he has another, an another, every hour for four more hours and another wet bed.
We had already given him 2 Diastats so the ER was the next choice. Finally, 5 PM Sunday was the last seizure but he is still sleeping this AM.
Tomorrow he turns 20. And you all have a field trip. We expect to make it. Marycke wanted to make cupcakes. Is that okay? If so, how many? Can we include candles since it will be off campus?
We thought everyone was going to be asked to bring something. We do not remember getting a note. Anything else we can bring?
Enjoy your day we will see you tomorrow.