Monday, January 31, 2005

8 Glorious Days

Well friends, it has been 8 glorious days since Alex's last seizure. Of course no one knows why we have seizures 12 of 14 days and then go this long without one. But we do not care. It is great just to have him seizure free and Marycke and I getting to sleep.

We finally got a surgery date to replace his VNS battery, Feb 9th. Of course if he remains seizure free till then....

Two doctors in Alex's life, Dr. Szabo, the neurologist and Dr. Jimenez, the neurosurgeon just had articles written about them. You will have to copy and paste to view the articles. I have posted them at

Alex Christmas 2004 Posted by Hello

Alex and Grandpa Posted by Hello

Monday, January 24, 2005

Hair cut Day

Waiting for Rosa to cut my hair. Posted by Hello

Rosa cuts my hair. Posted by Hello

Haircut with Rosa Posted by Hello

See I can hold still. Posted by Hello

Thursday, January 20, 2005

Sister Malinda with her Professor Posted by Picasa

Sunday, January 16, 2005

Same song

Seizures continue Saturday and Sunday. Sunday alone he had:
3:14 AM - tonic clonic seizure
3:53 AM - tonic clonic seizure
4:38 AM - tonic clonic seizure
5:04 AM - tonic clonic seizure, gave 15 mg Diastat

Neal wants to increase the Klonopin but Dr. Szabo said that is harder to get off. So we increased another of the 3 drugs Alex takes, ZOnegram, to 3 pills, twice per day.

Hope this helps.

Friday, January 14, 2005

Time to stop

Okay folks, this is getting really trying. Alex is in the non stop seizre mode again.

12:25 AM - Tonice Clonic seizure
1:42 AM - Tonic Clonic seizure, this is the 3rd so Marycke gave him Diastat
2:45 AM - Tonic Clonic seizure
4:55 AM - Tonic Clonic seizure
9:05 AM - Tonic Clonic seizure
4:50 PM - Tonic Clonic seizure

What will Saturday bring?

Thursday, January 13, 2005

Off to school

Alex has missed the last 3 days of school. But with only 1 night time seizure and two small ones this morning, Neal took him to school.

School calls by noon and says to pick him up. He has had a small seizure and does not look too good.


Seizure time again!

11:45 PM

Sunday, January 09, 2005

Day 3

Seizures continue. We are about out of Diastat and may have to take him to ER.

1:20 AM - Tonic clonic seizure
5:09 AM - Tonic clonic seizure
7:10 AM - Tonic clonic seizure
8:00 AM - Tonic clonic seizure
9:20 AM - Tonic clonic seizure; Marycke gives the Diastat
11:15AM - Tonic clonic seizure

Alex and Marycke sleep. Neal was at church. Returned to hear the discouraging word.

Saturday, January 08, 2005

Front's here

Over night the temp dropped like 40 degrees. Yesterday Neal had alergies bad and Alex missed school. Now today Alex has had more seizures:
11:45 PM - That's 1
12:25 AM - Here comes #2
1:42 AM - and # 3; Marycke gives him Diastat
2:45 AM - seizures resume
4:55 AM - still? What's the deal
9:05 AM - should we give him more?
finally, he sleeps and tings are calm
4:50 PM - Bummer they are back

Friday, January 07, 2005

Cedar Time

Oh man, the cedar is really blowing in. Neal is sneezing like crazy and Alex had 2 seizures. No school today.