8 Glorious Days

Well friends, it has been 8 glorious days since Alex's last seizure. Of course no one knows why we have seizures 12 of 14 days and then go this long without one. But we do not care. It is great just to have him seizure free and Marycke and I getting to sleep.

We finally got a surgery date to replace his VNS battery, Feb 9th. Of course if he remains seizure free till then....

Two doctors in Alex's life, Dr. Szabo, the neurologist and Dr. Jimenez, the neurosurgeon just had articles written about them. You will have to copy and paste to view the articles. I have posted them at

http://www.cafealex.com/html/news/Szabo%20050125.htm

http://www.cafealex.com/html/news/Jimenez%20%20050131.htm



Alex Christmas 2004



Alex and Grandpa

Hair cut Day

Waiting for Rosa to cut my hair.


Rosa cuts my hair.


Haircut with Rosa


See I can hold still.

Sister Malinda with her Professor

Same song

Seizures continue Saturday and Sunday. Sunday alone he had:
3:14 AM - tonic clonic seizure
3:53 AM - tonic clonic seizure
4:38 AM - tonic clonic seizure
5:04 AM - tonic clonic seizure, gave 15 mg Diastat

Neal wants to increase the Klonopin but Dr. Szabo said that is harder to get off. So we increased another of the 3 drugs Alex takes, ZOnegram, to 3 pills, twice per day.

Hope this helps.

Time to stop

Okay folks, this is getting really trying. Alex is in the non stop seizre mode again.

12:25 AM - Tonice Clonic seizure
1:42 AM - Tonic Clonic seizure, this is the 3rd so Marycke gave him Diastat
2:45 AM - Tonic Clonic seizure
4:55 AM - Tonic Clonic seizure
9:05 AM - Tonic Clonic seizure
4:50 PM - Tonic Clonic seizure

What will Saturday bring?

Off to school

Alex has missed the last 3 days of school. But with only 1 night time seizure and two small ones this morning, Neal took him to school.

School calls by noon and says to pick him up. He has had a small seizure and does not look too good.

Bummer.

Seizure time again!

11:45 PM

Day 3

Seizures continue. We are about out of Diastat and may have to take him to ER.

1:20 AM - Tonic clonic seizure
5:09 AM - Tonic clonic seizure
7:10 AM - Tonic clonic seizure
8:00 AM - Tonic clonic seizure
9:20 AM - Tonic clonic seizure; Marycke gives the Diastat
11:15AM - Tonic clonic seizure

Alex and Marycke sleep. Neal was at church. Returned to hear the discouraging word.

Front's here

Over night the temp dropped like 40 degrees. Yesterday Neal had alergies bad and Alex missed school. Now today Alex has had more seizures:
11:45 PM - That's 1
12:25 AM - Here comes #2
1:42 AM - and # 3; Marycke gives him Diastat
2:45 AM - seizures resume
4:55 AM - still? What's the deal
9:05 AM - should we give him more?
finally, he sleeps and tings are calm
4:50 PM - Bummer they are back

Cedar Time

Oh man, the cedar is really blowing in. Neal is sneezing like crazy and Alex had 2 seizures. No school today.