Front's here

Over night the temp dropped like 40 degrees. Yesterday Neal had alergies bad and Alex missed school. Now today Alex has had more seizures:
11:45 PM - That's 1
12:25 AM - Here comes #2
1:42 AM - and # 3; Marycke gives him Diastat
2:45 AM - seizures resume
4:55 AM - still? What's the deal
9:05 AM - should we give him more?
finally, he sleeps and tings are calm
4:50 PM - Bummer they are back

Cedar Time

Oh man, the cedar is really blowing in. Neal is sneezing like crazy and Alex had 2 seizures. No school today.

My sisters

Megan and Malinda waiting on Christmas Dinner 2004

A wonderful fire for Christmas. I like it now. No more running away.

Grandpa and I watch my toy train

Abusing my dog Abby at Christmas time.

Back to School

Well, it is mid week and I have gotten back to normal, sleeping and eating normally, wanting Mac Donalds and watching trains. So Dad figure, on the bus and off to see my friends at Mac Arthur High School.

Still no seizures. And my eye infection is all gone. Mom says I forgot some of the things that were important to me and now seem more interested in other things. For example, I do not care about the washing machine and am not putting puzzles together. But I love watching football and wearing my whistle.

Anyway, I'm ready for school

Getting my seat upfront on the bus. 

Back at school. 

Doing Okay

Things are returning to normal. I have not had any seizures and my eye is clearing up. Dad is taking me to Mac Donalds and maybe to watch trains. Yeah!

That's all folks

Well, that week can go down as one lost. We stopped three drugs, induced the 40+ seizures, got over 35 video clips and EEG readings, took a sort of good MRI, slept a lot, got woke up every 4 hours for 'vitals', got taken off 3 drugs, then put back one, spent nearly 12 hours having a seizure evry 10 minutes, added a new drug, then added back a 2nd old one, got an eye infection, lost 8-10 lbs, but mostly...

I got LOTS of HUGS well wishes, personal visits, emails, prayers, cards, balloons and love, from all of you. For that I will always be grateful.

Now I hope to return to school and resume a 'normal' life.

PS. As things progress I will update my blog from time to time.

Wow! Nice balloons. They came from friends at 1000 Oaks Elementary.

Here I am. Home and very happy to have my whistle back. 

Ah... nothing like coming into your Home Sweet Home. 

Ok, lets blow this pop stand! Take me home James. 

Coming Home

I am home! Yeah! I like my Dog, ballons, a shower, the opener, all my favorite things are still here. No one thought to explain to me that I would be getting them all back.

The Doc released me around 7 PM. Then we dashed to HEB for meds. And now home for more sleep.

Good stuff. Still with the one eye closed. 

Day 6

I still slept most of the day. I had not siezaures overnight but then had one around 7:30 AM. I can go home today but only if I get up and move around. I really don't want to.

Hey, that sounds like Football on TV. What is Dad watching? A&M vs Oklahoma. I want my whistle. So Dad calls Mom and she brings my whistle and Mac Donalds... Life is good!

Okay I am up! Dad was watch football, A&M vs Oklahoma and I heard that whistle blow. Then we sat by the window looking for helicopters. 

Over Night

Dad stayed with me again last night. This time he said I no seizures. Then morning came and around 7:30 I had a tonic clonic. But only one. So Dr. Szabo is still talking about me getting released today. But not until I get out of bed and maybe eat something.