Maybe if I just keep them closed no one will put in more medicine. 

Mom tries to clear the gunk from my eyes. This infection makes everything blurry. 

Day 5 - Friday

Last night was the worst so far. Since I am not a candidate for surgery the Doc is now trying to build up my medication levels.

Dad says, around 10 PM last night, I starting having 'small seizures' every 10 minutes, till just before 4 AM. Then I had the BIG ones again.

After 3 within 45 minutes the rousted the Doc out of bed. And he decided I needed Ativan again. Now in the past, this drug had stopped the seizures. So Dad got out his pillow and was ready to finally goto sleep. Nope - I had 3 more hard seizures.

Dad stayed there holding my hand and finally I fell asleep around 7:30 AM. Mom came in to relieve Dad. The Doctor came in and figures I will have to stay 1 maybe 2 more days. He is a little concerned I have not eaten anything since Noon Monday, nor have I had any liquids other than the IVs.

My VNS is not working but they can not replace it during this stay. We will have to get another Doctor and come to the hospital again.

Guess I will not be going home today. 

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Day 4

This was another long day. Just having little seizures every 45 minutes. Mom looks real tired. Dad looks like he got sleep. I think they change places tonight. Then Mom will get some sleep.

I'm suppose to go home tomorrow but now I have a bad eye infection.

My new meds are stopping the BIG seizures but not the small ones. Dr. Szabo says it may be 2 weeks before we get control again.

They are going to check the battery in my VNS implant. It probably needs a new one. This page can explain it better than I. http://www.vnstherapy.com/aboutvnsfs.html

Thanks again for the cards and emails.

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All night into Day 2

All night Dad stayed up to record my seizures. He pushes a button which sends in the nurses to take my vital signs. I had some where between 17 and 24 seizures. Dr. Szabo feels he got looks of good pictures and EEGs. He thinks I should have a SPECT scan.

In the morning, it is ore seizures, then hurry up and wait. Several people have stopped in to say high. A number of elders, ministers and friends have offered prayers.

We are waiting on transportation, because we are waiting on the anithesiologist who is stuck in ER, who is waiting for the nurses to administer the radioactive isotopes which are late because they are one urse short (waiting on her too) and the gentlemen across from me is having seizures too.

At this hopsital they have 6 rooms with video cameras and EEG recording. They have 2 more down in pediactrics and one in ICU. One guy watches all the screens. If Dad pushes the button and forgets to move from infront of the camera or pull back my sheets, a voice comes in from the ceiling, "Please move away from the camera." It is funny and makes Mom jump.

We finally get down to Imaging and they can not know me out. I keep moving, snoring or talking. They give me more drugs and the Dr. Has to put something in my nose. He stays with me for the whole SPECT.

I will go to recovery and Dad when home (he has not been asleep yet.) I hope he will post up some pictures and write a note.

I'll have more tomorrow.

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Incoming - Day and Night! Cool! 

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What you a mean just a few more wires? 

Man, this is more wire than under my Dad's computer desk.