Horseback

Finally, after nearly a month we got to take Alex for hippo therapy. He really enjoys the horses. It is cold but other than beign distracted by the trains he is doing well.

Seizure Saturday

Well for a change Alex had seizures on Saturday. He had a mild one around 2 AM and then a stronger tonic clonic at 7:20 AM. We held off giving him DIASTAT and he slept till noon.

Now he has been up enjoyimg a toasty fire while doing a puzzle. Neal and Alex have watched a little football, made and drank coffee and just picked up Sonic for Alex. He loves those foot long cheese dogs and tator tots.

Happy Thanksgiving

Alex enjoyed a great turkey day. He got to have both his sisters come home and then dinner with Grandpa.

Training

Yeah it is the weekend again. Love hopping in the van and chasing trains with Neal.
Sometime by the harley store as well.

Another Seizure Weekend

Another weekend. More seizures. This time not as bad as last.
He had 1 Sat PM, 1 Sun AM and another Sunday afternoon.
Fortunately no need for DIASTAT this weekend.

Strange this time was the Saturday seizure which was AT 9 o’clock while he was awake and doing a puzzle. These non sleeping sudden onset seizures always throw us off.

Anyway we expected to have him to school by 10:30 but he crawled back into bed and slept till 1:30. No school today.

Bowling

Alex seems well. He certainly had fun at bowling. Cool, silver medal! He came home off the bus and just talked and talked all afternoon and night. He is totally into wanting to be with his loved ones.

Doctor Visit

Alex had a good visit at the doctor. We still have some work to do on his hamstrings, but he enjoyed dinner with his Grandpa and then we watched airplanes for awhile.

ALex really enjoys doind puzzles in Neal's new 'techno DOCTOR' office. He can open and close the garage door while looking for the bus to come.

He seems ready for school and we hope all goes well.

Airshow and another Seizure Sunday

Sad to say it was another Seizure Sunday. Alex will not make it to school today.

We had a fun Friday night watching the Night Air Show out at Randolph. Alex really liked the old airplanes.

Then we spent Saturday working on computers and watching a few trains. Come Saturday night (11 PM) he started with his seizures. Back to back, very hard ones. So Marycke gave him Diastat. That lasted till 8:55 AM when he had them again. So more Diastat. Bigger dose. Fortunately he had no more and slept all of Sunday.

Once again it seems after adjusting the VNS he has increased seizures. July and August were great with only 2 per month., But now after the adjustment he is back to weekly. And they seem more violent.

He is still sleeping this AM and we hope he can get to school tomorrow.

Feeling good!

Alex had a great day. He got a haircut and then we went to Grandy’s for a little sausage and ‘plane watching’.

He slept well and is ready for school.