Another weekend and more seizures. We have been trying to get over to COmmunity Bible Church to evaluate their Special Needs Bible Classes but Alex keeps having seizures. Alex's Summer school teacher, David, is also one of the teachers at CBC.
7:00 AM tonic clonic
12:00 Non tonic clonic, after having fallen asleep
Sunday, June 26, 2005
Friday, June 24, 2005
Camp CAMP
Just got back from a great week at Camp CAMP. No seizures!!! And Mom and Dad got to have their first time together in nearly a year.
Children's Association for Maximum Potential (CAMP) is a non-profit corporation established in 1979 to provide a wide range of recreational, rehabilitative, educational, and respite services for children with developmental disabilities and their families. Central to each of CAMP's programs is the provision of medical support. This ensures that every child, regardless of the degree of his or her medical needs, will be able to participate in all programs. CAMP was founded with the express purpose of filling major gaps in services for children with developmental disabilities.
Back in the spring of 1979, Chris Johnson, a pediatric resident at the United States Air Force Medical Center in San Antonio, could have had no idea that performing a routine summer physical would change her life. Her young patient, Matt, had had a kidney transplant several years earlier. He also wore leg braces and a back brace. As Dr. Johnson conducted the physical exam, Matt chattered eagerly about the special camp for children with disabilities he was to attend that summer.
Chris Johnson dreamed of a camp that accepted all children, regardless of the severity of their disabilities. Her vision became a reality in 1980 when, with a grant from the Air Force Aid Society and the help of private donations, she founded Camp CAMP (Children's Association for Maximum Potential).
Children's Association for Maximum Potential (CAMP) is a non-profit corporation established in 1979 to provide a wide range of recreational, rehabilitative, educational, and respite services for children with developmental disabilities and their families. Central to each of CAMP's programs is the provision of medical support. This ensures that every child, regardless of the degree of his or her medical needs, will be able to participate in all programs. CAMP was founded with the express purpose of filling major gaps in services for children with developmental disabilities.
Back in the spring of 1979, Chris Johnson, a pediatric resident at the United States Air Force Medical Center in San Antonio, could have had no idea that performing a routine summer physical would change her life. Her young patient, Matt, had had a kidney transplant several years earlier. He also wore leg braces and a back brace. As Dr. Johnson conducted the physical exam, Matt chattered eagerly about the special camp for children with disabilities he was to attend that summer.
Chris Johnson dreamed of a camp that accepted all children, regardless of the severity of their disabilities. Her vision became a reality in 1980 when, with a grant from the Air Force Aid Society and the help of private donations, she founded Camp CAMP (Children's Association for Maximum Potential).
Thursday, June 23, 2005
Camp CAMP
We increased Trileptal to 300 m 2x per day
Decreased Zonegram to 900mg AM and 600 mg PM
Neal did not want to make any changes since Alex had did so well at Camp.
You can see Alex getting taller all the time. Russ and Alex did so well, Russ won an award for Best new counselor of the week.
Here is Alex and Russ with other counselors. Russ is a ninth grader from a HS here in San Antonio.
He enjoyed the canoeing, archery and horseback.
Decreased Zonegram to 900mg AM and 600 mg PM
Neal did not want to make any changes since Alex had did so well at Camp.
You can see Alex getting taller all the time. Russ and Alex did so well, Russ won an award for Best new counselor of the week.
Here is Alex and Russ with other counselors. Russ is a ninth grader from a HS here in San Antonio.
He enjoyed the canoeing, archery and horseback.
Saturday, June 18, 2005
Wednesday, June 15, 2005
Monday, June 13, 2005
Thursday, June 09, 2005
One day at a time
Well Summer school did not last too long. Alex only made it for day 1.
Today he had 3 seizures and slept most of the day.
Oh well there is always Monday.
1:00 AM Tonic Clonic
5:55 AM Tonic Clonic
7:20 AM Tonic Clonic
Today he had 3 seizures and slept most of the day.
Oh well there is always Monday.
1:00 AM Tonic Clonic
5:55 AM Tonic Clonic
7:20 AM Tonic Clonic
Wednesday, June 08, 2005
Tuesday, June 07, 2005
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