Sunday, July 24, 2005


Dad and I are Lifetime Members of the Texas Transportation Museum. They have cars, trucks and trains! Their website is:

Here I am watching the HO scale trains

Then it is out to ride the train. I like the open flat car. They also have an enclosed cabbose.

Too much fun!!

Mom is coming back in a couple of days. Yeah!

Wednesday, July 20, 2005

Ms Carmen

Now that I am 'an adult' the State of Texas provides Mom and Dad with several hours of respite care. Today I met Carmen. She will care for me for the next few afternoons since my Mom is in Michigan and Dad has to work.

She has a great dog named Pirate.

Also she has a very nice daughter, Naomi. We do puzzles together.

Tuesday, July 19, 2005

Schools Done

School is done and Dad has just picked me up from Carmens. We are going out on a Tueday night to MacDonalds and to see some trains. Two of my favorite things. Here is a new thing I like - a MacDonald's Bug Car. I guess traffic is bad enough downtown San Antonio that the area MacDonalds delivers to some of the office buildings. Cool car!!

Once inside I ate a cheesburger, fries and drank some coke. You can see my bruise is getting a little darker.

School is out

Boom! Yes I got a big bruise on my cheek. I guess on the last of school, we were having a BBQ and I fell asleep on the park bench. From there I rolled off hitting the pavement. Ow! It really is not as bad as it looks but it scared Dad a little. And of course this is the first day Mom is on vacation and I get a little hurt. Dave, my teacher, felt real bad but I am alright. They say I was having a great day. Guess I just up too early and then got sleepy. It may also have been the result of the increases in my medications. Anyway, I am okay.

Sunday, July 17, 2005


School is coming to an end. We made it to the Beach once and now Dad and I get to go look for more trains. We even got to ride the minature train at the Zoo!

Wednesday, July 13, 2005

Med Change

Today we changed medicines, increasing the Trileptol. Alex seems much more sleepy.

Friday, July 08, 2005


Two early morning seizures, even with a day off from school....

5:55 AM tonic clonic
7:25 AM " "

Tuesday, July 05, 2005


Decrease Trileptol to 450 mg bid

Sunday, July 03, 2005


One tonic clonic this AM 7:40 AM
Alex seems very sleepy. Meds?

Saturday, July 02, 2005


It has been a while, but we have once again had to give Alex Diastat to stop his seizures. He had tonic clonic seiures at:
4:30 AM
7:50 AM
11:00 AM

And we also changed his meds with
Trileptol going up to 600 mg 2x a day
Zonegram decreasing to 2600 mg 2x a day
Klonipin and Depakote remain the same